RockingJuJu

I must be getting old, every time I came to update the site today I could not remember what I was going to type.

Jacey was home sick from school today. I don't know what it is with her ears and throat this month. This is the 3rd time this month she has had some type of infection. She is back on meds even though she just got off of them last week.

Her surgery date is approaching and I just found out yesterday that the Child Life Specialist (Brenda) can't go in with her. She is not scheduled to be their until a few hours after Jacey's surgery. She is so very sweet and has held Jacey's had through every procedure. She is trying her best to arrange for someone to watch her kids so she can be there for Jacey. It is not looking good though. I told Jacey this yesterday and she is now refusing to do it with out her. She wants me to call and see if they can just do it in the office so Brenda can come be with her. I was supposed to call and look into it today but with her being home and not feeling well I just didn't find the time.

Jacey sat down with me the other night to help me get the 13 page form filled out for the late effects clinic. It made me sad when we got to the questions about how she was feeling mentally. When asked about how cancer has changed her this what she said. "I have a pet spot on my arm, I grow to much hair on my body, the hair on my head is bad hair, my eyeball is broken and I have a bunch of scars." Wow I didn't think those things were things she though about much. Then there was a series of other questions. I guess it was just a shock to me to hear some of her answers.

• Do you get upset easily? YES
• Do you sleep well? NO
• Do you worry about your health? YES
• Do you worry about your cancer coming back? YES
• Do you feel good about yourself? NO
• Do you feel depressed? ( I had to explain what that meant) YES

Phil's company may be getting new insurance. It would be a great help if they did. The current coverage is very limited and leaves a lot of unpaid bills. This is a process they go through every year and the end result is usually just keeping the stuff he have and raise the premiums. I never really minded doing the paper work for nothing but now that Jacey has been through so much it is a rather large pain to do something for nothing. I know Phil could feel my anger over it when he brought me the forms. This company wants to know who has been to the doctor in the last 5 years and why and if so what meds have they taken. I can hardly remember last year let alone 5 years ago. I must make the time to write the book about Jacey even though the want the form back a.s.a.p. Who knows how long Phil had it before her brought it to me. So if you don't hear from me for a few days that is what I am doing.